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Rare disease committee shot down at Queen's Park | CTV Newskitchener.ctvnews.ca › rare-disease-committee-shot-...
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· Angela Massel, 26, who has congenital central hypoventilation syndrome, was at the legislature to support Harris's call for a committee.
Tour highlights plight of rare disease diagnosis - Waterloo Chroniclewww.waterloochronicle.ca › News
www.waterloochronicle.ca
· It took Angela Massel years to be diagnosed with congenital central hypoventilation syndrome. Doctors thought Erika Crawford's Ehlers–Danlos ...
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